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Rewriting the future of dementia: building a community of researchers with a shared purpose | Lucy Wilson | UK Dementia Research Institute
Manage episode 420702989 series 2129751
Despite the alarming statistic that 1 in 3 people born today will develop dementia in their lifetime, research into the neurodegenerative disease has historically been underfunded compared with other areas of medical research such as cancer.
In this episode of Research Comms, host Peter Barker explores the reasons behind that with Lucy Wilson, Director of Communications and Engagement at the UK Dementia Research Institute (DRI), who offers optimistic insight into how the tide is turning.
Lucy outlines how the DRI, founded in 2017, was created to address the knowledge gap and boost the dementia research workforce across multiple UK universities. In doing so, the institute has brought together researchers from across diverse disciplines, collectively enabling a better understanding of dementia and the brain.
This 'hub and spoke' model is not without its comms challenges, and Lucy shares her insights into how her team and their key initiatives help foster a shared sense of the DRI's purpose.
If you're a listener of the podcast, we'd love to connect!
Orinoco Communications — What We Do
Connect with host Peter Barker on LinkedIn
Take part in the Orinoco Research Comms survey
Show links:
63 episodes
Manage episode 420702989 series 2129751
Despite the alarming statistic that 1 in 3 people born today will develop dementia in their lifetime, research into the neurodegenerative disease has historically been underfunded compared with other areas of medical research such as cancer.
In this episode of Research Comms, host Peter Barker explores the reasons behind that with Lucy Wilson, Director of Communications and Engagement at the UK Dementia Research Institute (DRI), who offers optimistic insight into how the tide is turning.
Lucy outlines how the DRI, founded in 2017, was created to address the knowledge gap and boost the dementia research workforce across multiple UK universities. In doing so, the institute has brought together researchers from across diverse disciplines, collectively enabling a better understanding of dementia and the brain.
This 'hub and spoke' model is not without its comms challenges, and Lucy shares her insights into how her team and their key initiatives help foster a shared sense of the DRI's purpose.
If you're a listener of the podcast, we'd love to connect!
Orinoco Communications — What We Do
Connect with host Peter Barker on LinkedIn
Take part in the Orinoco Research Comms survey
Show links:
63 episodes
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1 Beyond the buzzword: how storytelling can transform research communications 34:45

1 Rewriting the future of dementia: building a community of researchers with a shared purpose | Lucy Wilson | UK Dementia Research Institute 33:57

1 Making Sense of Sensemaking: A framework for communications that cut through the noise | Liz Neeley & Ambika Kamath | Liminal 35:51

1 How an economic institute's video strategy helped it reach millions of people around the world | Matthew Kulvicki | Institute for New Economic Thinking 33:07

1 Avoiding the Spiral of Silence: The Case for Talking About Climate | Eric Fine | Yale Program on Climate Change Communication 39:08

1 Generative-AI: Establishing guidelines for how to use it | Amy Mollett, Barney Brown and William Kerslake | University of Cambridge 44:52

1 Trust: how can research communicators earn the trust of the public? 33:53

1 Changing landscapes: telling stories from Antarctica against a backdrop of climate change and an evolving media | Athena Dinar | British Antarctic Survey 24:43

1 Unpacking ‘impact’: What does it mean, and how do you know if you’re achieving it? | Prof. Mark Reed | Fast Track Impact 32:29

1 How can research-adjacent professionals pave the way for a more collaborative research and innovation ecosystem? | Sarah McLusky | Research-Adjacent Consultant 33:03

1 Fusion energy: how to prepare the world for transformative technology | Celestine Cheong | UK Atomic Energy Authority 38:11

1 How can we improve public understanding of artificial intelligence to ensure it works for all? | Sophie McIvor | Alan Turing Institute 23:13

1 Attitudes of young people to science | Katherine Mathieson | British Science Association 29:12

1 What can we learn from the Covid pandemic about crisis communications? | Glen Nowak | Grady College 28:38

1 Growing your community on Linkedin | Laura Hannan | Pitch121 36:17

1 Harnessing the power of social media | Amy Mollett | University of Cambridge 30:47

1 Communicating research for the development sector and NGOs | Suzanne Fisher-Murray | Christian Aid 33:46

1 Telling stories about innovation | Ashley Jennings | Texas Innovation Center 25:31

1 Is 'data sonification' the new frontier for science communication? |Matt Russo | System Sounds 21:56

1 How to read statistics (and knowing when to trust them) |Tom Chivers 33:30

1 Creating new narratives around Artificial Intelligence |Dr Kanta Dihal| Global AI Narratives Project 33:54

1 The art of data visualization | Stefanie Posavec and Miriam Quick 28:48

1 How to create effective online public engagement events | Dr. Jamie Gallagher 29:02

1 Communicating the biggest story of our times | Alex Buxton | University of Oxford 41:42

1 How to combat the 'crisis of science communications' | Prof. Andy Miah | University of Salford 31:37

1 Going viral on Tik Tok with vaccine video content | Dr. Anna Blakney 30:03

1 #BlackInSciComm Week and STEM diversity | Raven Baxter aka Raven the Science Maven 36:42

1 How to build an engaged community | Dr Susanna L Harris 38:14


1 Championing women in STEM | Suw Charman-Anderson | Ada Lovelace Day 47:27

1 Dispelling myths about animal research | Wendy Jarrett | Understanding Animal Research 31:19

1 Medical Research Charities: Communicating in a Crisis 19:05

1 Is listening the best antidote to vaccine scepticism? | Prof. Heidi Larson | Vaccine Confidence Project 37:24

1 How to 'prebunk' misinformation | Dr Sander van der Linden | University of Cambridge 44:02

1 What makes a conspiracy theorist? | Dr. Asheley Landrum | Texas Tech University 44:16


1 Talking climate change with sceptics | Prof. Katharine Hayhoe 45:59

1 'Scientists who selfie' - scicomm + social media | Dr Paige Jarreau 32:06

1 Covid-19 as a news story | Fiona Fox | Science Media Centre 40:15

1 Paving the way for scicomm | Prof. Uta Frith 52:53

1 Taking on the 'anti-vaxxers' | Dr. Pete Hotez | Baylor College of Medicine 40:44

1 How to harness the 'science of storytelling' | Will Storr 46:08


1 The power of authenticity | Barney Brown | University of Cambridge 44:57

1 Celebrating research in the humanities | Michael Eades | Being Human Festival 42:42

1 Want to start a science podcast? | Emily Elias | Oxford Sparks Big Questions Podcast 27:36

1 Using poetry to communicate science | Sam Illingworth | Manchester Metropolitan University 20:39

1 Science in the news | Fiona Fox | Science Media Centre 49:49

1 Transitioning from science to scicomm | Dr Kat Arney 41:03

1 Communicating across divides | Jonathan Haidt | New York University 39:33

1 Putting comms at the core of research | Liz Hutchinson | The British Academy 30:29


1 Climate communication in practice | Sam Illingworth | Climate Communications Project 39:11


1 Science and art meet | Science Gallery London 26:15

1 Communicating the future of humanity | Martin Rees | University of Cambridge 38:10

1 Getting your research on TV and radio | Lucy Vernall | Academic Ideas Lab 37:08

1 Knowing your digital audience | Dr Michaela Livingstone-Banks | Oxford Sparks 36:44

1 A bold mission to transform how we see science | Katherine Mathieson | The British Science Association 38:44

1 Why public engagement? | Kimberley Freeman | Queen Mary University of London 34:36

1 Research comms, Texas style | J.B. Bird & Christine Sinatra | University of Texas 35:53

1 Physician scientist activist |Sir Doug Turnbull | Wellcome Centre for Mitochondrial Research 34:38
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