How Research is Reshaping Lives in Congenital Heart Disease

Heart to Heart with Anna

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In this engaging episode of Heart to Heart with Anna, we dive into the significant strides made in pediatric cardiology, focusing on hypoplastic left heart syndrome (HLHS) and the inspiring journey of dedicated professionals like Dr. Paul Grossfeld. This episode highlights the complex nature of congenital heart disease, exploring not just the technical advancements in surgical techniques and post-operative care, but also the emotional journeys faced by families. Dr. Grossfeld shares powerful stories from his practice, illustrating the deep connections formed between healthcare providers and patients.
Listeners will learn about the critical role of early diagnostics and how modern medicine has transformed the fatality rates associated with HLHS. The episode discusses the collaborative efforts across medical disciplines, which lead to innovative treatment and significant improvements in patient outcomes. With a keen focus on the importance of research to address genetic and environmental influences on heart conditions, Dr. Grossfeld emphasizes the need for community support in fundraising and awareness initiatives.
As the conversation shifts toward the importance of heart screenings for athletes, listeners will discover how these measures can prevent tragic outcomes and promote healthy practices among young sports enthusiasts. We encourage our audience to reflect on their understanding of pediatric heart health and to become advocates for research and support within the community. Join us in this eye-opening episode that aims not only to inform but to inspire action among listeners who share a commitment to the congenital heart disease community. Subscribe, share, and engage with us to help uplift and empower those affected by these conditions.

Here are some helpful links mentioned in this episode:
HeartWorks: https://www.webuildhearts.org
Dr. Paul Grossfeld's charities:
Light the Way: https://radyfoundation.org/get-involved/events/light-the-way/
Miracle Makers: https://radyfoundation.org/ways-to-give/fundraise/miracle-makers/
Hearts Unite the Globe (HUG): https://www.heartsunitetheglobe.com

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Chapters

1. Introduction and Opening Remarks (00:00:00)

2. Anna's New Book Project & Author Journey (00:00:36)

3. HeartWorks Virtual Dinner (00:03:14)

4. Interview with Dr. Grossfeld (00:05:59)

5. Cardiac Screening for Athletes (00:08:22)

6. Pediatric Cardiology and Personal Journey (00:15:02)

7. Advancements in HLHS Treatment (00:24:14)

8. Collaborative Efforts in Pediatric Cardiology (00:27:36)

9. Nationwide Collaboration and Innovation (00:31:01)

10. Dr. Tim Nelson's Stem Cell Research (00:31:32)

11. Genetic Syndromes and HLHS (00:34:28)

12. Challenges in Research Funding (00:37:03)

13. Genetic and Environmental Factors (00:40:46)

14. Frog Model and Early Intervention (00:51:07)

15. How to Support the Research (00:56:10)

16. Conclusion and Final Thoughts (00:59:29)