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Two Uteri, No Instructions | Rare Congenital Defect

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Manage episode 490780906 series 1323209
Content provided by CBC. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by CBC or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

When the map doesn’t match the terrain, sometimes you just make your own path. Natalia Bartlomowicz was born with a rare congenital condition so unique it doesn’t even have a name—just a stack of medical files and a body doctors still can’t quite predict. In this episode, she opens up about navigating childhood surgeries, a 16-hour operation in Boston, and the emotional toll of being called a “medical mystery.” From discovering she has two uteri to building a safe space for youth with chronic illness, Natalia’s story is one of resilience, radical self-advocacy, and finding strength in the unexpected. She talks dating, dignity, and how the healthcare system can better treat patients as people. It’s a heartfelt ride through one woman’s no-name diagnosis—and the superpower she’s made of it.

Links:

together-we-thrive.ca

Follow Sickboy:

Instagram: https://www.instagram.com/sickboypodcast

Tiktok: https://www.tiktok.com/@sickboypodcast

Discord: https://discord.gg/expeUDN

  continue reading

911 episodes

Artwork
iconShare
 
Manage episode 490780906 series 1323209
Content provided by CBC. All podcast content including episodes, graphics, and podcast descriptions are uploaded and provided directly by CBC or their podcast platform partner. If you believe someone is using your copyrighted work without your permission, you can follow the process outlined here https://ppacc.player.fm/legal.

When the map doesn’t match the terrain, sometimes you just make your own path. Natalia Bartlomowicz was born with a rare congenital condition so unique it doesn’t even have a name—just a stack of medical files and a body doctors still can’t quite predict. In this episode, she opens up about navigating childhood surgeries, a 16-hour operation in Boston, and the emotional toll of being called a “medical mystery.” From discovering she has two uteri to building a safe space for youth with chronic illness, Natalia’s story is one of resilience, radical self-advocacy, and finding strength in the unexpected. She talks dating, dignity, and how the healthcare system can better treat patients as people. It’s a heartfelt ride through one woman’s no-name diagnosis—and the superpower she’s made of it.

Links:

together-we-thrive.ca

Follow Sickboy:

Instagram: https://www.instagram.com/sickboypodcast

Tiktok: https://www.tiktok.com/@sickboypodcast

Discord: https://discord.gg/expeUDN

  continue reading

911 episodes

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