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Reaching for the stars: A powerful conversation about MRKH.
Manage episode 353680280 series 3441833
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Vics Lane is the founder of MRKH Stars, an organization providing support and guidance for young women across the world, diagnosed with MRKH. MRKH, also known as Mayer-Rokitansky-Kuster-Hauser syndrome is a congenital malformation of female reproductive organs. In her own words:
"I'm Vics, I'm 19; I am a writer, and a university student and I live with a condition called MRKH Syndrome. In light of my diagnosis, in April 2021 I founded and now run a foundation called MRKH Stars, supporting teens and newly diagnosed warriors with the same diagnosis as me."
Vics is inspirational, passionate, and extremely motivated to help other young women process the complicated and life-changing diagnosis of MRKH.
Here's a snapshot of our conversation:
[01:53] Vics breaks down exactly what MRKH is, and what it isn't.
[04:33] Vics shares what it's like being diagnosed with a life-changing reproductive condition at a young age.
[11:20] The story of how MRKH was born!
[24:42] What the grief of being diagnosed with MRKH is really like, and why it's important to be able to feel that grief.
[38:03] Vics' best piece of advice for a young girl or woman who has recently been diagnosed with MRKH.
[45:48] Vics' 3 most influential people in her life.
[53:03] 3 guests at her dream dinner party.
[60:10] Where you can connect with Vics and MRKH Stars.
You can find MRKH Stars and Vics on the following platforms:
Instagram: @mrkhstars
Twitter: @MrkhStars
TikTok: @mrkhstars
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