180: Does Disability Parenting Ever Get Easier? Survival Mode, Burnout Mode, and Beyond w/ Erica Stearns and Alyssa Nutile

The Rare Life

The age old question: Does this life ever get easier? And if so, when?

Just as you might expect, the answer isn’t quite cut and dry, but in this episode, I’m joined by Erica Stearns and Alyssa Nutile to sort through this complex question. Using their Caregiver Continuum framework, they offer a way for you to orient yourself and gain footing as a disability parent, even if life doesn’t always feel like it’s getting easier.

If you’ve been feeling lost and overwhelmed in this parenting journey, this episode is here to give you an anchor point.

And on February 14, we’re launching our 2nd Annual Friends and Family Fundraiser! We understand that this community is overworked and under-resourced, so we’re not asking for your funds, only that you share this fundraiser with your friends, family, and community that may want to contribute. Thank you so much! We couldn’t do this without you!

Links:

Ask your community to donate to our Friends and Family Fundraiser between Feb 14-Feb 28!

Or ask them to donate via Venmo @the_rare_life! https://venmo.com/code?user_id=4224512098830319954&created=1739551472.105737&printed=1

Listen to Ep 170 all about hospitalizations.

Listen to Ep 54 on Erica’s perspective as a disabled adult.

Hear Alyssa’s other episodes: 179: Exhaustion, 171: Financial Strain, 140: Alyssa’s Story,125: Travel w/ Disabled Kids

Read more aboutthe Caregiver Continuum.

Fill out our contact form to join upcoming discussion groups!

Follow Alyssa and Erica at @caffeinated_caregivers!

Follow us on Instagram @the_rare_life!

Donate to the podcast orContact me about sponsoring an episode.

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Join the Facebook groupParents of Children with Rare Conditions.

Access the transcript on the websitehere.

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